The Care Pathway at the Complex Endometriosis Center

The patients in question have complex endometriosis, persistent pain, or suspected multi-organ involvement.

This first step helps ensure that patients with endometriosis are referred to care that is appropriate for the complexity of their condition.

The Complex Endometriosis Center offers several ways to get in touch to make it easier to access care:

• - a hotline staffed by a coordination team
• - an online contact form for submitting medical information
• - potential job placement through specialized networks such as the Rofim platform

This organization aims to streamline procedures and ensure a prompt and structured response.

The initial consultation allows for a comprehensive assessment of the patient’s condition, taking into account all symptoms, previous test results, and medical history.

Beyond the medical aspect, this consultation also incorporates a human dimension, offering patients the opportunity to receive supportive care and emotional support. The goal is to provide a space where patients can be heard and understood—something that is essential when dealing with a challenging chronic condition like complex endometriosis.

Depending on the situation, additional tests may be ordered. These may include medical imaging to refine the diagnosis and accurately assess the extent of the lesions.

These tests are not routine. They are offered on a case-by-case basis, tailored to each individual situation, in order to avoid unnecessary testing and to prioritize a personalized approach.

Once all the relevant information has been gathered, the patient’s case is discussed at a Multidisciplinary Team (MDT) meeting.

It brings together various specialists to assess the situation and determine the most appropriate treatment strategy. This collaborative decision ensures consistent care based on shared expertise.

Depending on the findings of the multidisciplinary team meeting, the patient may be referred to various specialist clinics:

• - gynecological surgery
• - gastrointestinal surgery
• - urological care
• - Pain management consultation
• - anesthesia
• - support for assisted reproductive technology (ART)

This approach allows the treatment plan to be tailored to the complexity of the disease and the specific needs of each patient.

When surgery is indicated, the procedure is tailored to the location and extent of the lesions, with a clear goal: to effectively treat the disease while preserving organs and functions.

The techniques used require the specific expertise of the CEC, particularly in complex cases involving multiple organs.

After the procedure, a support plan is put in place to ensure optimal recovery. Personalized home nursing care is provided.

Pain management and postoperative follow-up are incorporated at this stage of the care pathway.

A post-operative follow-up appointment is scheduled with the surgeons who performed the procedure. This appointment provides an opportunity to review the post-operative course, evaluate the results, and adjust the treatment plan if necessary.

The process doesn’t end after surgery. A follow-up care plan is established in collaboration with the referring surgeon and the gynecologist.

The goal is to monitor the progression of the disease, adjust treatment as needed, and provide ongoing support to the patient.

Pain management, quality of life, psychological impact, and plans for motherhood are all factors taken into account in the care pathway. Each patient receives personalized attention and a treatment plan tailored to her specific situation.